With the help from some close friends (Matt and Becca), I was able to get in to see a neurologist sooner than September 20th. Ironically, it was with the same neurological group with which I have the 9/20 appointment.
The neurologist connected a bunch of wires and did some shock stimulus and some needle stimulus tests. At the end, he concluded that there is a very strong likelihood that we can eliminate ALS, and perhaps even Parkinson’s. However, he’s leaning more towards Myasthenia Gravis (MG for short).
He put me on pyridostigmine and said if it helps me feel better, then I’ve got MG. If it does not, we’ve saved time. He still wants me to get an MRI which is scheduled for tomorrow evening.
They didn’t have my medication at the pharmacy so it had to be special ordered. (There’s very small percentage of people with MG.) So, I’m hoping it WILL help (yeah, it’s kind of funny to hope I have MG, but I’m tired of living like this — constant pain and fatigue.) Because it will be in this afternoon, I decided to take the grandson’s to see the tractors as I promised. I figure that should wear me out and be a good test for this medication.
We went and saw the tractors. Ricky (the owner) was there. He remembered me and he let me drive a big OLD Farmall Tractor and I gave Brad a ride. It was a hoot. Brad will always remember today, that’s for sure.
His little brother was too frightened by the noise of that big diesel engine. It was loud and rumbly.
Ice Cream and McDonald’s
On the way home we stopped at Toomey’s Corner and bought ice cream cones. We then stopped at McDonald’s. The idea was to take lunch home, but the boys ate their 10 piece nuggets before we got home.
After dropping everyone off at the house, I went and picked up my prescription. I took my first dose around 2pm. It’s now 5pm and I’m feeling much better than I have in a long time.
Perhaps, but the doctor says if it is, I’ll at least enjoy 2-3 days not feeling crappy. If it really is MG, I should start feeling better in 2-3 days and it will stay that way.