Tag Archives: MG



I’m unsure what’s worse getting a cold while on prednisone or getting a cold and having MG.  I’m sure the three together are working to keep me down this last two weeks.  The last two weeks have been the absolute worse since I contracted MG — short of when Elizabethe and I had the flu earlier this year.

Balancing Act

It’s a balancing act.  One medication has this effect, while another one is supposed to deal with that problem.  The doctors have their work cut out for them.  It must be quite the dilemma trying to decide if someone should be treated for high blood pressure or taken off prednisone.

I can only wait and see.

Hill Cumorah Pageant

An announcement Sunday was made concerning pageants in the church.  It appears the Hill Cumorah Pageant will wind down by 2020.  For many of the people in this region, that will be quite a culture change.

I hope people will now spread out their visits to Palmyra.  The Pageant windfall is nice, but I think if all the locals play this right, they might seel blessings come more steadily throughout the year and years to come.

People will still flock to Palmyra to see the sacred sites.  It just won’t all be mid-July.


We are facing many decisions.  We’re leaning towards selling the house and building here in Palmyra, and finding someplace closer to the girls in Utah.  There is no way I can physically manage the house.  I can barely do the bare minimum each day without totally exhausting myself.  Myasthenia Gravis is quite debilitating.

I read that men who contract MG lose about 50% of their income on the average.  While I don’t remember the figure of those who become completely disabled, the research paper did say that a large majority find they cannot work at all or very little.

In my Myastenia Gravis for Men group, it is a very common consensus that there is a lot of down-play about the disease.  I conducted a little poll and asked, “Do you have pain associated with your MG?”

Now, you’ll find website after website that says there is no pain associated with MG.  However, my little poll says about 67% have pain (50% most of the time + 17% some of the time).  That’s only 1/3rd who say they don’t have pain.  It’s unscientific, but it confirms my suspicions.

Another comment you hear is, “Many people with MG go on to live productive lives.”

We got talking about this in the group.  We’re all kind of laughing about how they define “productive”.  They definitely don’t mean “active”!  Most of us say our productivity is cut drastically and activity even more so.


I know before I caught a cold a couple of weeks ago, my “productivity” was about 30-60 minutes a day.  For the last two weeks, it has been about 1-2 hours a week split between 2-3 days.  In other words, this cold dropped me from 3.5-7 hours a week down to 1-2 hours a week.


The activity I tolerate most is walking slowly.  Even then, I must be careful to avoid overdoing it.  When my legs aren’t all weak feeling, it is nice to walk a little.  When I overdo it, the results are the pain, weakness, and fatigue.

Even typing my blog is fatiguing.  (Hence, so few entries this year.)  Brain fog makes it worse.  I’m constantly getting red-lines under words because my fingers aren’t hitting the right keys.  Then, it’s difficult to think, “What word was I trying to type?”  That only makes things worse because I find it upsetting when I type something like, “zyjod od s yrdyz” when I meant to type, “This is a test”.  (I’ve never had a problem with my hands being shifted until this brain fog thing started to happen.

Talking is pretty much a no-no.  That’s one of the first muscles to be affected.  Paralyzed vocal chords carry with them a double-whammy.  The first whammy is losing your voice.  The second is the reflection that coughing will solve the problem.  It doesn’t.  It only makes it worse, but try telling your subconscious that.

My Hope

My hope is the doctors and I will find a good balance of my medication that will allow me to have the stamina to at least feel like I was able to get some exercise in.  It may not be the stamina needed to mow the lawn, shovel snow, fix a broken faucet, build a shelf for Elizabethe, etc., however, it would be nice to know I’m able to do something for my heart.  It might be riding my stationary bike for 15 minutes a couple of times a day.  (Right now, the doctor has told me to not attempt any exercise program until we get my medication stabilized.)

Reality tells me there will be good days and bad days.  Hope tells me there should be a way to lesson the bad days (which have been all too frequent lately), and know my limits.



We went to see the movie Risen this morning.  This is a movie about the resurrection as being told by a fictional character (a Roman Tribute).

I’d give the movie a B.  Aside from a few inaccuracies, it was a decent story.  I wish it would have illustrated more of the actual events.  For example, I wish they would have shown the angle coming and rolling the stone away, and the guards  witnessing the angle and stuff instead of having a drunken guard tell the story to Flavius.  (Flavius was the Roman Tribute.)

Little things that bug me in a movie like this are things like this…

The guard looks to the left, rather than to the right, when looking to see if Jesus is in the tomb.  (The Gospel of Mark tells us the body of Jesus was to the right of the entrance.)  The movie implied they were at Galilee when Christ ascended to heaven, and not on the Mt. of Olives.  And, one of my pet peeves is having Jesus look like an Arab, and not the Jew that he was.

It’s got some violence in it and is a bit graphic in places, however, no sex, nudity or bad language.  Risen is an okay movie and definitely better than most things Hollywood produces in terms of content.


For lunch we visited MG – Mesagrande.  It’s a burrito place on 31 & 250.  Entres for two, chips and two drinks will run you about $25.

Elizabethe had a chicken cessadilla and I had a pork burrito.  We shared some chips and guacamole.  The food was a bit on the bland side for my taste.  I don’t mean it wasn’t spicy enough, because you can always add hot sauce.  I mean the meat and guacamole were lacking in seasonings.  The meat needed a little more savory spices and salt, and the guac needed lime juice and salt.

copyright 2016 db walton

Mesagranda Meal

The place was EMPTY.  When we first got there, there were two ladies finishing their lunch, but when they left, we were it.  Granted, it was 3 in the afternoon, but I’m willing to bet there were 6 or more people eating at McDonald’s while we ate here.

copyright 2016 db walton


I will say this, my wife likes it  because nothing burned her mouth.  It is also clean.  So, we’ll probably return again.

This I will predict…. if they don’t do something to bring in the business, they aren’t going to survive.  The sign out front doesn’t say, “EAT HERE”.  In fact, when I first saw it, I thought the black and white sign was for a trendy clothing store.  So, if anyone from MG is listening, you need a bright yellow sign with a big green MG and bright red Mesagrande under it.  Then, people will think FOOD.