Tag Archives: blood

28 Draws

28 Draws

28 draws is what I’m up to.  That’s 28+ different blood tests as they try to figure out what’s ailing me.  While a “normal” means that particular test is within expected range, it doesn’t necessarily mean, in all cases, that the thing being tested for is not present.  Example:  Someone can test negative for the Rheumatoid Arthritis  factor in their blood, but still have rheumatoid arthritis.

So, here I sit, waiting for the last 5 test results.  Today is actually going pretty well.  Saturday and  Sunday were pretty bad.  Elizabethe saw one of my tremors and grabbed my thumb (it was wagging up and down very fast.)  She said it felt like it was “vibrating”.

Today, I’m feeling the best I’ve felt in a LONG time.  I wish I knew what is accounting for my feeling of well being today.  I mowed 1/2 the lawn, but I don’t want to push things.  Past experience has shown if I push too hard, things only get worse the next day.  I’m really hoping tomorrow will be a repeat of today.

Who To Trust

When it comes to autoimmune things, I really don’t trust sources with no scientific background or data.  Yeah, there are people who rub an essential oil on themselves, they feel better, and pronounce themselves cured.  I’m sorry — that’s not a cure unless it can be repeated over, and over, and over again.

In the case of diseases like Myasthenia Gravis, Ataxia, CFS, ALS, etc., there are lots of well meaning people out there who really don’t have a clue.  I’m preparing myself for the day when they find out what’s going on to be able to respond to people who try to push their “cure”.

I guess the best way to respond is to see how much they really know about the disease.  Let’s face it, doctors who have studied most of their lives, specializing in some of these ailments, don’t have a cure.  Yet, there will be someone who paid $350 to join a MLM group to sell oils who think they have an oil that will cure it.

I’ve been doing a LOT of research on the Internet looking for clues.  For the most part, I’m finding I trust sites like the Mayo Clinic, WebMD, etc.



Another downside to recovery from an accident is lack of exercise.  The downside to lack of exercise, besides the obvious, is your triglycerides go up.  I got the results of my blood test and it looks like I need to ramp up the exercising.

With the warm weather setting in, I can break out my bicycle.  That will be good exercise and something I enjoy.

My physical was at 8am this morning.  It felt like it was closer to noon.  I got up at 2:30am to take Jennifer and her family to the airport.  While I came home and took a short nap before my physical, it still felt like the day started at 2:30am.

Painting Fodder

I’m waiting for my painting fodder to arrive.  In other words, I’m waiting for the male doll to arrive so I can set up a romance novel cover scenario.  It’s coming from China (of course) so it takes a while.  The outfit for the male arrived.  It’s a black leather jacket (real leather!), white shirt, 2 belts, shoes, pants, 2 ties.

For a background, I need a castle.  I might get started painting it.  That’s something I can paint without reference.  A castle is simply geometric shapes pieced together.