Tag Archives: ALS

Additional Tests

Additional Tests

The doctor has ordered additional tests.  Everything was within the normal range, and now she’s ordering tests for more serious conditions.  I come back on Wednesday morning to be tested for 6 things.

While these tests can come back negative, a negative result doesn’t mean I don’t have what is being tested for.  For example, a negative RA factor doesn’t mean you don’t have rheumatoid arthritis.

During the Visit

During the visit the doctor mentioned myasthemia gravis.  After the visit, I looked up all the symptoms, and it matches, but so does ALS and Sjogren’s.  All three, plus Parkinson’s, are being tested for.

Mowing the Lawn

I came home, rested, and then mowed the lawn.  It really did me in for the rest of the day.  It is frustrating to save all my energy to mow the lawn, and then have no energy to do anything else.  And, like the last time, that feeling can last for days.

Oh, I asked the doctor, “So, if I get up in the morning feeling tired, should I go for a walk anyway in hopes that it will perk me up?”

Her answer was a resounding, “NO!”

She explained that if it is MG, going for a walk will only make things worse.  The best thing to do is if I’m tired, rest.

Florida is Cooler

Florida is Cooler

Today the weather map for the USA shows Florida is cooler than most other places.  That’s a switch.  This heatwave has hit the entire lower 48 states.  It’s miserable.

I decided to do a salad for dinner with tuna sandwiches instead of cooking.  It’s just too hot.  I bet the sister missionaries were thankful we didn’t bake lasagna for dinner.  (Elizabethe is!)

Ice cream for dinner, again because it is too hot.

Not a Good Day

It’s not a good day health wise.  Yesterday I experienced a sudden loss of strength in my fingers.  Coupled with the other symptoms I searched for what it could be.  The first thing that popped up was ALS.  Oh, I hope it isn’t that.  Reading that just compounded my already existing stress.

Drug Trial

Elizabethe is in a drug trial program.  It’s an already existing drug that has a side effect of weight loss.  They are testing to see if it is effective as a weight loss.  So far, it has taken away her appetite.  I joked that she’ll lose weight, but I’ll gain what she loses because I’ll have to eat her leftovers too.

Actually, that’s not going to happen.  Whatever it is that I have is making me less hungry than before.