Posting Dereliction

Posting Dereliction

I am guilty of posting dereliction.  Well, I guess if I’ve done so willfully.  (I guess it isn’t dereliction if it is unwillfully?)

When the scripture say the spirit is willing, but the flesh is weak, I fully understand how that applies to my case.  I would willing be outside working on the yard, painting the house, and a host of other things.  I planned to paint the house this summer, but at a last minute, decide it could wait for 2019.  Anything is better than doing little to nothing.

Granted

We take so much for granted, until we don’t have it, or the threat of it being taken away comes along.  I walked a couple of blocks with Natalie and the boys to watch the bed races.  It felt so good to be outside.  That was about 2 hours ago, and I’m starting to pay the price now.

We are led to believe exercise helps us recover.  I believe that’s usually the case, but in the case of things like ALS, Myasthenia Gravis, and a few other diseases, the opposite is true.  I want so badly for the doctor to tell me they figured out what is wrong, and the best thing for me to do is to work and exercise until I drop every day.  If that would pull me out of this, I would be doing it.

In the Meantime

In the meantime I struggle with what I should write.  There have been a few days all I would be able to say is, “I laid around all day and napped and watched a couple of TV shows.”

Yeah, that may not sound very good, but when your brain and body aren’t communicating to each other the way they are supposed to, it’s the best you can do.

Two Jerks

Two Jerks

Two jerks were sitting, smoking cigarettes,  by the open entrance to one of my properties.  My wife confronted them telling them they couldn’t smoke or loiter there.  The one said, “He lives here.”

WRONG ANSWER MORON.

She said something to the effect, “You live here?  I happen to know you don’t because I’m the landlord.”

He then changed his story, “Oh, I was mistaking.”

Let’s Be Clear

Let’s be clear.  When it is your property, you set the rules as to who can, and who cannot smoke, drink, cuss, etc., while a guest on your property.  Even before non-smoking laws became the thing for states and cities to pass, some businesses would flat-out say, “No Smoking”.

Unfortunately, there were businesses who felt they would lose business if the told people they couldn’t smoke there.  That’s a bunch of hogwash.

New York State Commercials

I like the New York State TV commercials that basically say if you’re poor and uneducated, the tobacco companies are fooling and robbing you.  I think they should add: drug dealers, beer and alcohol companies, and other forms of drug peddling.  They go after doctors for prescribing too many medications, but they ignore the alcohol industry.

Next Time

The next time they are out there, I’m just going to call the police department.  There’s even a no-trespassing sign on the door.  I’ll just ask they be arrested for trespassing.

Getting Closer

Getting Closer

I think they are getting closer to a diagnosis.  While the latest blood test results don’t account for all of my symptoms, it might account for my fatigue.  That’s good news… I guess.  The downside is the only then I can do is take it easy and wait things out.

Yesterday I just rested.  This morning I mowed the back lawn.  It’s about lunch time and I feel relieved that they are making progress.

Permanent vs Temporary

Until they know, it’s hard to say why things are the way they are.  They could be permanent or temporary.  We always want things to be temporary when it comes to health problems, but it is a fact of life that many people have to deal with illness and disabilities that simply won’t go away or get better.  The best to hope in those cases is they won’t get worse.

Right now, the hope is this fatigue thing is temporary and once my system gets rid of the virus causing it, I won’t be so tired all the time.  That’s the hope, at least.

Life Goes On

Life goes on, with or without you.  The problem is, if you can’t take care of your responsibilities, who will?

Someone pulled me aside a couple of Sunday’s ago and out of the blue said, “You reach a point in life where you have to realize you’re around so others will have someone to serve.”

That’s a hard pill to swallow.  It’s even harder if you’ve prided yourself your whole life of being able to take care of yourself and your family.

28 Draws

28 Draws

28 draws is what I’m up to.  That’s 28+ different blood tests as they try to figure out what’s ailing me.  While a “normal” means that particular test is within expected range, it doesn’t necessarily mean, in all cases, that the thing being tested for is not present.  Example:  Someone can test negative for the Rheumatoid Arthritis  factor in their blood, but still have rheumatoid arthritis.

So, here I sit, waiting for the last 5 test results.  Today is actually going pretty well.  Saturday and  Sunday were pretty bad.  Elizabethe saw one of my tremors and grabbed my thumb (it was wagging up and down very fast.)  She said it felt like it was “vibrating”.

Today, I’m feeling the best I’ve felt in a LONG time.  I wish I knew what is accounting for my feeling of well being today.  I mowed 1/2 the lawn, but I don’t want to push things.  Past experience has shown if I push too hard, things only get worse the next day.  I’m really hoping tomorrow will be a repeat of today.

Who To Trust

When it comes to autoimmune things, I really don’t trust sources with no scientific background or data.  Yeah, there are people who rub an essential oil on themselves, they feel better, and pronounce themselves cured.  I’m sorry — that’s not a cure unless it can be repeated over, and over, and over again.

In the case of diseases like Myasthenia Gravis, Ataxia, CFS, ALS, etc., there are lots of well meaning people out there who really don’t have a clue.  I’m preparing myself for the day when they find out what’s going on to be able to respond to people who try to push their “cure”.

I guess the best way to respond is to see how much they really know about the disease.  Let’s face it, doctors who have studied most of their lives, specializing in some of these ailments, don’t have a cure.  Yet, there will be someone who paid $350 to join a MLM group to sell oils who think they have an oil that will cure it.

I’ve been doing a LOT of research on the Internet looking for clues.  For the most part, I’m finding I trust sites like the Mayo Clinic, WebMD, etc.

Hazy

Hazy

I can’t tell if I’m hazy because I’m fatigued, or I’m fatigued because my brain is hazy.   I’m counting the days before my next appointment.  It will be nice if the doctor can pinpoint the cause of my symptoms.

Church today went okay, but late in the afternoon, I was standing talking to my wife when I just lost all energy.  It was as though someone unplugged my power source.  I didn’t feel dizzy or faint, just zapped of all energy.

Christ Centered

We had a wonderful Christ centered Sacrament meeting today.  President and Sister Evans were our speakers.  They have amazing testimonies and their talks were amazing.

I shared with them afterwards how bad I felt when I had brought a friend to church.  The first speaker talked about the “atonement” without mentioning Christ.  I felt sad that the speaker didn’t talk about how Heavenly Father provided a Savior who would atone for our sins.  Instead, it was more like the “atonement” was some mystical thing.  It’s not.  It is a plan our Heavenly Father had and it was fulfilled by Jesus Christ.

Priesthood Meeting

Today was my first Sunday teaching Elder’s Quorum on the 4th Sunday.  Our lesson was about ministering and how ministering means serving others and not ourselves.  The men in the class gave some wonderful examples from the scriptures.  I felt very good about how the lesson went.

PPSNYS Workshop 2018

PPSNYS Workshop 2018

Yesterday I completed my week at PPSNYS Photo Imaging Workshop 2018.  My instructor was Rick Friedman.  Excellent instructor and I learned a lot.

Our topic was speedlight (battery powered strobe lights) photography.  There were 8 of us in the class and everyone had a great time.

copyright 2018 db walton

Receiving my 2 PPA Educational Merits

Healthwise

Healthwise, I started off pretty well, but by the time Tuesday rolled around I was in bad shape.  I started having involuntary tremors in my left hand.  But, Wednesday was better, and then I proceeded to go downhill again from there.  Today, I’m guarding myself so I don’t end up feeling sick for church.

I’ve discovered steak seems to help.  Not hamburger, but rare beef.  (I have not noticed any real change after eating a burger.  However, I’ve been experimenting since making this discovery and lean steak seems to boost my energy level and reduce the other symptoms.

Texas Roadhouse

In keeping up with my red meat consumption, we used our gift certificates for Texas Roadhouse for dinner last night.  I ate half my steak there, and brought the other half home.  This morning, I ate 1/4 to keep my strength up in case it is red beef related.  So far my theory is holding up.

Pageant 2018 Shift

Pageant 2018 Shift

I fulfilled my Pageant 2018 Shift today.  It was a depressing feeling to not feel my happy self.  I usually enjoy working Pageant security, but with this illness it was everything I could do to endure the 4 hours.

When I got home Elizabethe gave me the painful reminder that I may have to stop volunteering for stuff like this.

I fear how I’m going to handle next week’s photography school.

Update

Since mowing the lawn Monday I have been very sick.  They are doing 6 more blood tests this week.  While some of them will have severe consequences if they turn out positive, at this point, knowing is better than not knowing.

The gal who drew my blood says her mom has been tested on and off for the last 4 years.  That must be heartbreaking to know you’re sick, but have the doctors stymied as to why.  She was telling me people were telling her it is all in her head.  (How cruel.)

I have this to say about it being “all in one’s head”…

My own experience is this:  If it were all in my head, I’d be riding my bicycle 25-40 miles a day, and taking 50 mile trips often.  I’d have the outside of my house painted by now, and I would have done it all by myself.  And, the list would go on.

Nobody wishes these symptoms upon themselves.  Nobody.

Additional Tests

Additional Tests

The doctor has ordered additional tests.  Everything was within the normal range, and now she’s ordering tests for more serious conditions.  I come back on Wednesday morning to be tested for 6 things.

While these tests can come back negative, a negative result doesn’t mean I don’t have what is being tested for.  For example, a negative RA factor doesn’t mean you don’t have rheumatoid arthritis.

During the Visit

During the visit the doctor mentioned myasthemia gravis.  After the visit, I looked up all the symptoms, and it matches, but so does ALS and Sjogren’s.  All three, plus Parkinson’s, are being tested for.

Mowing the Lawn

I came home, rested, and then mowed the lawn.  It really did me in for the rest of the day.  It is frustrating to save all my energy to mow the lawn, and then have no energy to do anything else.  And, like the last time, that feeling can last for days.

Oh, I asked the doctor, “So, if I get up in the morning feeling tired, should I go for a walk anyway in hopes that it will perk me up?”

Her answer was a resounding, “NO!”

She explained that if it is MG, going for a walk will only make things worse.  The best thing to do is if I’m tired, rest.

Mealthy Pot Enchilada

Mealthy Pot Enchilada

I’m really enjoying my Mealthy Pot.  Today I made Mealthy Pot Enchilada.  Basically, I layered ingredients divided by corn chips.  Layer 1 – meat, layer 2 was chili rellenos, and layer 3, cheese and onion.

The biggest mistake, however, was cooking it too long.  I put it on for 45 minutes.  I think 20 minutes would have been just right.  45 minutes over cooked the meat.

Next time I make Mealthy Pot Enchilada I won’t cook it as long, and I’m going to put the chili rellenos at the bottom, then cheese and finally meat at the top.  I will also use more enchilada sauce on the meat.

Strawberries

The strawberries we picked yesterday were used in the dessert I made.  I baked a thin poppyseed cake (about 1″ thick), sliced it in to 5×5 squares.  I then put a layer of heavy whipped cream with diced strawberries between two squares of cake. Next came mashed strawberries over the top and that was topped with whipped cream.

We’re talking a serious strawberry shortcake (but made with my poppyseed cake, and not dry, tasteless shortcake.)

Tomorrow

I see the doctor tomorrow, and I plan to mow the lawn after my appointment.  We’ll see how I do after mowing the lawn.

Strawberry Fields Forever

Strawberry Fields Forever

Elizabethe and I took a field trip today to a strawberry hydroponics farm in Auburn.  The entire time I’m singing in my mind, “Strawberry Fields Forever.”  It’s a pretty small, but impressive operation.

We had a $5 off coupon so we purchased some strawberries and a few other items there.  We’ll be back the next time grandchildren visit in the summer.  It’s a fun place.

On our trip we stopped at a Mennonite store on SR 318, and we had lunch at the little Mexican restaurant in downtown Waterloo.  Their food is about the best Mexican food you’ll find in these parts.

It was a fun date.

Veggie Chips

We also stopped at Real Deals where they had Terra chips for $1 a bag.  I bought 10 bags.  They are normally over $3 a bag.  We also stocked up on a few other items.

One item worth mentioning was Hershey’s chocolate chips (many varieties) for $1/bag.  We bought a few of those because you can never make to many chocolate chip cookies.

Fatigue

In spite of all that, my fatigue level is not bad.  I’ve decided instead of mowing the lawn tomorrow morning, I am going to go for an early morning walk at the Sacred Grove.  I can mow the lawn on Monday.  Today, it’s strawberry fields forever.