Monthly Archives: August 2018

Preliminary Diagnosis

Preliminary Diagnosis

With the help from some close friends (Matt and Becca), I was able to get in to see a neurologist sooner than September 20th.  Ironically, it was with the same neurological group with which I have the 9/20 appointment.

The neurologist connected a bunch of wires and did some shock stimulus and some needle stimulus tests.  At the end, he concluded that there is a very strong likelihood that we can eliminate ALS, and perhaps even Parkinson’s.  However, he’s leaning more towards Myasthenia Gravis (MG for short).

He put me on pyridostigmine and said if it helps me feel better, then I’ve got MG.  If it does not, we’ve saved time.  He still wants me to get an MRI which is scheduled for tomorrow evening.

PROGRESS!

Tractors

They didn’t have my medication at the pharmacy so it had to be special ordered.  (There’s very small percentage of people with MG.)  So, I’m hoping it WILL help (yeah, it’s kind of funny to hope I have MG, but I’m tired of living like this — constant pain and fatigue.)  Because it will be in this afternoon, I decided to take the grandson’s to see the tractors as I promised.  I figure that should wear me out and be a good test for this medication.

We went and saw the tractors.  Ricky (the owner) was there.  He remembered me and he let me drive a big OLD Farmall Tractor and I gave Brad a ride.  It was a hoot.  Brad will always remember today, that’s for sure.

His little brother was too frightened by the noise of that big diesel engine.  It was loud and rumbly.

Ice Cream and McDonald’s

On the way home we stopped at Toomey’s Corner and bought ice cream cones.  We then stopped at McDonald’s.  The idea was to take lunch home, but the boys ate their 10 piece nuggets before we got home.

After dropping everyone off at the house, I went and picked up my prescription.  I took my first dose around 2pm.  It’s now 5pm and I’m feeling much better than I have in a long time.

Placebo effect?

Perhaps, but the doctor says if it is, I’ll at least enjoy 2-3 days not feeling crappy.  If it really is MG, I should start feeling better in 2-3 days and it will stay that way.

Posting Dereliction

Posting Dereliction

I am guilty of posting dereliction.  Well, I guess if I’ve done so willfully.  (I guess it isn’t dereliction if it is unwillfully?)

When the scripture say the spirit is willing, but the flesh is weak, I fully understand how that applies to my case.  I would willing be outside working on the yard, painting the house, and a host of other things.  I planned to paint the house this summer, but at a last minute, decide it could wait for 2019.  Anything is better than doing little to nothing.

Granted

We take so much for granted, until we don’t have it, or the threat of it being taken away comes along.  I walked a couple of blocks with Natalie and the boys to watch the bed races.  It felt so good to be outside.  That was about 2 hours ago, and I’m starting to pay the price now.

We are led to believe exercise helps us recover.  I believe that’s usually the case, but in the case of things like ALS, Myasthenia Gravis, and a few other diseases, the opposite is true.  I want so badly for the doctor to tell me they figured out what is wrong, and the best thing for me to do is to work and exercise until I drop every day.  If that would pull me out of this, I would be doing it.

In the Meantime

In the meantime I struggle with what I should write.  There have been a few days all I would be able to say is, “I laid around all day and napped and watched a couple of TV shows.”

Yeah, that may not sound very good, but when your brain and body aren’t communicating to each other the way they are supposed to, it’s the best you can do.

Two Jerks

Two Jerks

Two jerks were sitting, smoking cigarettes,  by the open entrance to one of my properties.  My wife confronted them telling them they couldn’t smoke or loiter there.  The one said, “He lives here.”

WRONG ANSWER MORON.

She said something to the effect, “You live here?  I happen to know you don’t because I’m the landlord.”

He then changed his story, “Oh, I was mistaking.”

Let’s Be Clear

Let’s be clear.  When it is your property, you set the rules as to who can, and who cannot smoke, drink, cuss, etc., while a guest on your property.  Even before non-smoking laws became the thing for states and cities to pass, some businesses would flat-out say, “No Smoking”.

Unfortunately, there were businesses who felt they would lose business if the told people they couldn’t smoke there.  That’s a bunch of hogwash.

New York State Commercials

I like the New York State TV commercials that basically say if you’re poor and uneducated, the tobacco companies are fooling and robbing you.  I think they should add: drug dealers, beer and alcohol companies, and other forms of drug peddling.  They go after doctors for prescribing too many medications, but they ignore the alcohol industry.

Next Time

The next time they are out there, I’m just going to call the police department.  There’s even a no-trespassing sign on the door.  I’ll just ask they be arrested for trespassing.

Getting Closer

Getting Closer

I think they are getting closer to a diagnosis.  While the latest blood test results don’t account for all of my symptoms, it might account for my fatigue.  That’s good news… I guess.  The downside is the only then I can do is take it easy and wait things out.

Yesterday I just rested.  This morning I mowed the back lawn.  It’s about lunch time and I feel relieved that they are making progress.

Permanent vs Temporary

Until they know, it’s hard to say why things are the way they are.  They could be permanent or temporary.  We always want things to be temporary when it comes to health problems, but it is a fact of life that many people have to deal with illness and disabilities that simply won’t go away or get better.  The best to hope in those cases is they won’t get worse.

Right now, the hope is this fatigue thing is temporary and once my system gets rid of the virus causing it, I won’t be so tired all the time.  That’s the hope, at least.

Life Goes On

Life goes on, with or without you.  The problem is, if you can’t take care of your responsibilities, who will?

Someone pulled me aside a couple of Sunday’s ago and out of the blue said, “You reach a point in life where you have to realize you’re around so others will have someone to serve.”

That’s a hard pill to swallow.  It’s even harder if you’ve prided yourself your whole life of being able to take care of yourself and your family.