28 draws is what I’m up to. That’s 28+ different blood tests as they try to figure out what’s ailing me. While a “normal” means that particular test is within expected range, it doesn’t necessarily mean, in all cases, that the thing being tested for is not present. Example: Someone can test negative for the Rheumatoid Arthritis factor in their blood, but still have rheumatoid arthritis.
So, here I sit, waiting for the last 5 test results. Today is actually going pretty well. Saturday and Sunday were pretty bad. Elizabethe saw one of my tremors and grabbed my thumb (it was wagging up and down very fast.) She said it felt like it was “vibrating”.
Today, I’m feeling the best I’ve felt in a LONG time. I wish I knew what is accounting for my feeling of well being today. I mowed 1/2 the lawn, but I don’t want to push things. Past experience has shown if I push too hard, things only get worse the next day. I’m really hoping tomorrow will be a repeat of today.
Who To Trust
When it comes to autoimmune things, I really don’t trust sources with no scientific background or data. Yeah, there are people who rub an essential oil on themselves, they feel better, and pronounce themselves cured. I’m sorry — that’s not a cure unless it can be repeated over, and over, and over again.
In the case of diseases like Myasthenia Gravis, Ataxia, CFS, ALS, etc., there are lots of well meaning people out there who really don’t have a clue. I’m preparing myself for the day when they find out what’s going on to be able to respond to people who try to push their “cure”.
I guess the best way to respond is to see how much they really know about the disease. Let’s face it, doctors who have studied most of their lives, specializing in some of these ailments, don’t have a cure. Yet, there will be someone who paid $350 to join a MLM group to sell oils who think they have an oil that will cure it.
I’ve been doing a LOT of research on the Internet looking for clues. For the most part, I’m finding I trust sites like the Mayo Clinic, WebMD, etc.